366 days of gratitude

Our second son would have been celebrating a birthday today.

But he died just 10 days after his fifth birthday. He had a brain disorder that left him with multiple handicaps and had led to the death of his older brother, Tom, when he was only 20 weeks-old.

When Dan died I was sad, but I was also relieved. Looking after a five year-old who could do no more than a new-born child was demanding and I knew our lives would be easier without him but I also know they are better because he lived.

His death freed us up to do things which were difficult to do with him but his life made us realise we shouldn’t take them for granted.

It was easy to say he couldn’t do anything but he taught us to appreciate simple pleasures, to lose the ignorance we had about intellectual disability, how fortunate we are to be part of a close extended family and circle of friends, that ability isn’t a right but a privilege and that love really is stronger than death.

Today I’m grateful for all of that.

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